Wednesday, December 9, 2009

catch up

I apologize for the abruptness of the last post. I was really stressed out and scared, but I am a lot calmer now. I thought maybe I this might be a good time to catch up on my dad's experience.

As mentioned, my dad was diagnosed last April. He was at stage 3. He never liked the doctors so prior to his bout with pneumonia, he never went to the doctors. We suspect that he had MM for a while. His hospitalization with pneumonia was last Feb and from there everything was a blur. Many tests were done and next thing we know, he was diagnosed with MM. Two months later, he was admitted for endocarditis, and while he was in the hospital he had his first BMB. His bmb showed 80% plasma content. After his month stay, his o/h started him on 10mg of Revlimid and low dose Dex (started low due to prior infections) and the Rev increased to 25mg over the next months. Rev/dex worked very well, brought him to almost a complete remission. His o/h started talking about a aSTC but he was responding so well to the Rev/dex we pushed it back.


A little introduction:
When my dad was diagnosed he was 57. He has always been healthy and active. We immigrated here in 1992, we have a typical immigrant story, except for MM. My parents worked their way up from having very little to making something out of themselves. It was really hard for them to adjust to a whole different life and country, and now they have to adjust to the diagnosis. My dad has amazing doctors and nurses, we are so thankful for all they have done.

So a little about me, I am currently finishing up my last year of undergrad, majoring in Neurobiology, Phyisiology, and Behavior, with a minor in Nutrition. I can't wait to graduate and move back home to spend time with my family, though I also really like living on my own. It is hard to fully enjoy being on my own when my heart is at home with my family, especially my dad's. My dad's diagnosis has influenced me a lot in many ways. After I graduate, my dad's transplant doctor offered me a research position in MM. I have always wanted to start a blog that documented my father's experience with MM, but I was a bit hesitant. I don't share much of what I go through with my friends because I don't think they would understand and I definitely don't want them to feel bad for my family and me. Sometimes I feel like I can't share my thoughts and feelings and it just builds in me. I thought maybe this would be a good chance for me to express how I feel and my perspective on my dad's myeloma experience. I guess I exploded in my last post because everything was getting so heavy.

3 comments:

  1. I've been thinking about you a lot. You are definitely part of a caring community. Hang in there. You are showing a great deal of maturity. That maturity will help you meet your goals. Thanks for sharing more of your story. I am praying specifically for you. Lots of love to you and your family this Christmas.

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  2. One of the best parts of blogging is that it's a great outlet and blog readers who find what you write about relevant can respond! I can relate to being glad to be home during such a stressful time. Although going back home after being away can definitely present some challenges! That research position sounds fabulous! Way to go!

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  3. Thanks for the info! They plan to attend! My Dad has been a bit busy with teaching lately but Ill remind him to double check his email! Thinking of you! Hope all is going well! I hope you survived crazy finals!

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